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«Better Start Initiative Useful Links For parents and carers of children with disability Contents Page 3 Questions to ask your service provider Page 4 ...»

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Better Start Initiative

Useful Links

For parents and carers of children with disability

Contents

Page 3 Questions to ask your service provider

Page 4 Carer Support

Page 4 Early Intervention, Education & Childcare

Page 6 Having fun with children

Page 6 Parenting

Page 8 Toy Libraries

Page 9 Government Schemes & Payments

Page 13 Advocacy

Page 15 Legal Services

Page 15 Counselling & Support groups

Page 17 Foundations Page 18 Respite & Future Planning Page 18 Health & Wellbeing Page 20 Disability General Page 22 Genetic Support Page 22 Disability Specific Page 28 Equipment Needs Page 29 Disability Groups & Communication Page 30 Financial Counselling Support Services Page 31 Interesting Page 33 What an Allied Health Therapist Does Disclaimer: This document has been prepared by the QLD Better Start Team as a resource for parents and carers. While we have taken all care to ensure its accuracy Carers Qld takes no responsibility for any incorrect information in this document or provided by the listed organisations and services.

Questions to ask your Service Provider When you are looking at different services, these practical questions may be useful to consider  What sort of service will you and your child get (hospital care, home visits, therapy sessions or group programs)?

 How much flexibility is there?

 How much choice will you have about what services to use within a service?

 Where will the service be provided (via videoconferencing, in your home, in the hospital, at a clinic, at a community centre, at an early learning centre or at a school)?

 Can you and your child get to the service easily?

 Can the service be provided by alternative means ie Skype, teleconferencing if you can’t get out of the house or if you live in a remote area?

 When and how will your child receive the service?

 How long is each service likely to take?

 How long will your child need the service?

 What costs are involved? If you don’t understand the fee schedule make sure you ask for an explanation.

If you are eligible or become eligible for Better Start:

 Is there a fee difference if my child is Better Start approved?

 What will happen if we use up all of the Better Start funding but I still feel my child would benefit from the services early intervention service? What services will I be entitled to and what will the cost be for these services?

Weighing up the options:

The services that are best for you and your child depend on your families particular needs.

When you’re deciding on a service or provider, you can think about:

 What your options are – is this the only provider or arethere other good choices?

 How comfortable you feel about any interactions you’ve had with the service  The personal and practical benefits  The personal and financial cost Don’t forget….

You’re entitled to get further opinions from other service providers if you’re not sure about the choice you have made. Don’t forget that you can choose more than one service provider

and you can change providers whenever you like:

Some of the information on this checklist was taken directly from the www.raisingchildren.net.au website Carer Support Carers Australia is the peak national body representing Australia’s Carers. They take a leadership role and respond to carers' needs and those of the people they care for, being mindful of their financial challenges and in many cases, lack of social inclusion. Carers Australia advocates on behalf of Australia’s Carers to influence policies and services at a national level. They work collaboratively with partners and member organizations and the state and territory Carers associations, to deliver a range of essential national career services.

P: (02) 6122 – 9900 Website: www.carersaustralia.com.au Carers Qld is an association for relatives and friends caring for people with a disability, mental illness, drug and alcohol dependencies, chronic condition, terminal illness or who are frail. It is the peak organisation for carers in Qld and the only state-wide organisation that has carers as its primary focus. The organisation is a non-government, non-profit, non-political organisation and governed by a volunteer Board of Directors. It is part of a national Network of Carers Associations and work collaboratively to lead change and action for carers.

P: 1800 242 636 Website: www.carersqld.asn.au Care Aware is a national communications initiative that aims to raise awareness, recognition, support and appreciation of the 2.6 million Australians who provide unpaid care and support to family members and friends. Website: www.careaware.com.au Companion Card – The national Companion Card Scheme brings together State & Territory Companion Card programs that enable people with lifelong disability to participate at venues and activities without incurring the cost of a second ticket for their companion. The cardholder presents their card at participating organisations to purchase a ticket or pay an entry fee and receive a ticket for their companion at no extra charge. The National Card Scheme is comprised of Companion Card programs run by each State & territory which issue the Companion Card.





P: 13 13 04 Email: cardservices@smartservice.qld.gov.au Website: www.qld.gov.au/disability/out-and-about/companion-card/ The Care Program – Carers Qld have partnered with well-known businesses to deliver discounts to carers on a range of products and services. P: 1800 242 636 Website: http://carersqld.asn.au/getinvolved/the-care-program Early Intervention, Education & Childcare Parent Line - providing support, counselling and parent education for the cost of a local call, P: 1300 30 1300 from 8am-10pm, 7 days a week. Website: www.parentline.com.au/ Queensland Education Department - Kindergarten programs for every Qld child Website:http://deta.qld.gov.au/earlychildhood/service/kindy-every-child.html The Inclusion Support Program assists child care services to include children with additional needs in child care. To find the service in your area visit and search for Inclusion Support Program.

Website: https://education.gov.au/inclusion-and-professional-support-program The Early Childhood Information Service is a free state-wide information service provided by the department. The service operates 24 hours, 7 days a week and provides information to assist families in choosing an early childhood education and care service that meets their needs.

The Early Childhood Information Service can provide the following information about early

childhood education and care services including:

* The types of services available * service location, hours of operation and contact details * Information on what to look for in a quality service * Information for prospective developers about establishing a service in Queensland * Information for students undertaking studies in the early childhood field.

Website: http://deta.qld.gov.au/earlychildhood/families/ Early Childhood Development Program: Parents accompany their child to a playgroup session at an early childhood development program (ECDP). Children are aged from birth to 3.5 years. Centrebased: Parents are encouraged to attend one centre based session per week with their child.

Outreach Service to the Home Outreach service to the home supported by the ECDP teacher, advisory visiting teacher or other specialist support staff as resourcing and priorities allow. Children aged from birth. Website: http://education.qld.gov.au/schools/disability/early-childhooddevelopment-services.html My Child: Find information on the types of child care, fee assistance and links to other useful websites about children’s health, wellbeing, parenting and family support services.

Website: www.mychild.gov.au/ Queensland Parents of People with Disability - I choose inclusion – A guide for parents in their search for an inclusive education.

Website: www.qppd.org/images/docs/2011_ichooseinclusion.pdf Naplan: Adjustments are provided to students with disability to support access to the tests and encourage maximum participation. These adjustments are detailed in the National Protocols for Test Administration. Website: www.nap.edu.au/naplan/school-support/adjustments-forstudents-with-disability/adjustments-for-students-with-disability.html

Qld Education Disability Guide:

This guide aims to give you a broad understanding of the support available for children and young people with disability in the state school sector.

* Schooling for students with disability in Queensland * The importance of early childhood education * The specialised support available to children and students with disability * What you can do to get the best outcomes for your child.

The guide is a starting point to help you understand how the education system works and what is available for students with disability and what supports are available. The guide can provide you with a starting point for your discussions with schools and other departmental staff. It will assist you and your family to make informed decisions about your child's education. It is organised by topics, and provides advice about where you can find more detailed information.

Website: http://education.qld.gov.au/studentservices/learning/disability/parentguide/ Helping your child to read: Reading Our Way is an exciting new reading program that has been designed for students who are visual learners. This all inclusive program teaches sight words through fun, interactive and engaging activities, with everything that is needed to implement the program included in the kit. Website: www.readingourway.com.au Having fun with children The Children’s Week Council of Australia celebrate Children's Week, an annual event during the fourth week in October with a diverse range of events and activities focuses the attention of the wider community on children, their needs and achievements celebrating the right of children to enjoy childhood and to demonstrate their talents, skills and abilities. P: 3269 – 8648 Website: www.childrensweek.com.au/ Qld Playgrounds - a search engine for disability friendly playgrounds around Queensland.

Website: www.qld.gov.au/disability/children-young-people/playgrounds/ Riding for the Disabled Association is a voluntary, non-profit organisation which provides opportunities for anyone with a disability to enjoy safe, healthy, stimulating, therapeutic, horserelated activities in Australia.

P: 3888 5277 Website: www.rda.org.au Nican: Information service regarding sport, recreation, tourism and arts for people with disabilities.

P: 1800 806 769 Website: www.nican.com.au Deaf Sport Australia aim to facilitate and support deaf Australians in all levels of sport.

P: (07) 3106 0310 TTY: (07) 3106 0310 Website: www.deafsports.org.au Sports Connect supports people with a disability by providing sport, recreation and fitness and rehabilitation. Programs and services delivered by our staff and experienced volunteers in south-east Queensland and Cairns, Townsville, Mackay and Capricorn regions. We also link members with other sport and healthy activity providers who are committed to including people with a disability in their programs and services. Website: www.sportingwheelies.org.au/our-services/sport/classification

Aquatic Fun days through Swimming Australia Website: http://qld.swimming.org.au/

Playgroup Qld is a place for you and your child to interact with other parents/caregivers and their children. Playgroup provides opportunities for play and learning. Your child will develop new skills and gain confidence by interacting with other children.

Website: www.playgroupqueensland.com.au/ Get Started is one of three funding programs that comprise the Queensland Government's Get in the Game initiative to support sport and recreation at the grassroots level. Get Started assists children and young people who can least afford or may otherwise benefit from joining a sport or recreation club. Eligible children and young people can apply online for a voucher valued up to $150 online, which can be redeemed at a sport or recreation club registered with Get Started.

Website: www.nprsr.qld.gov.au/funding/getinthegame/getstarted.html Parenting You are not alone a carer’s journey: Thoughts ideas and experiences from carers.

Website: www.info4carers.com The Raising Children Network website includes parenting information for different age groups of children and a network of support and services including a specific site for special needs.

Website: www.raisingchildren.net.au

Healthy eating guide for children up to 4 year of age. Website:



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